Most people will show signs of restlessness, agitation or delirium during the last few days or even weeks of their life. This can take many forms. They may have difficulty finding a comfortable position. They may pick at their clothing or blankets. You may notice them twitching, fidgeting or waving their arms. Some people seem to be reaching upwards, as if to be lifted.
Hallucinations and delirium
Delirium is a mental state where the person seems confused or dis-oriented, not recognizing the room, or familiar people. Hallucinations are common (hearing or seeing things that others do not see). Unless the visions are upsetting to the patient, nothing really needs to be done. People in the last week or so often seem to speak to relatives or friends who have already passed on. Usually these are positive and comforting exchanges. There is no need to intervene. Action is only required if the patient is at risk of causing harm, to themselves or others.
Emotionally, the patient may become irritable or paranoid. A normally calm individual may have mood swings and get quite angry.
As a family member, it can be distressing to watch a loved one behave so differently. Between 25-85% of terminally ill patients experience one or more of these symptoms, so in some ways it’s quite normal. Restlessness, agitation and delirium are often the result of organ systems, such as the kidneys, shutting down. Or dehydration as the patient loses interest in food or water. It is simply part of the last few days or weeks.
Normal or not, it is important to determine if there is suffering involved. If so, then there are several remedies to explore, depending on the cause:
Pain. Agitation and restlessness are common when people are in pain. For persons with dementia or people who have problems speaking, this non-verbal cue is the best way to express themselves. As a result, the first step with agitation is to look for possible causes of pain. Is there a sharp object somewhere? Twisted bedding around a foot or arm? Is there an infection? Address these possible sources of pain and see if the restlessness or agitation will go away.
Fever. High temperatures can cause a patient to become delirious. Perhaps there is an infection that needs treating. Or the fever may just be the body fighting off the terminal condition. Ask if there are appropriate medicines you can give to bring down the fever.
Constipation. When was the patient’s last bowel movement. The agitation could come from the discomfort of constipation. Ask what remedies would be most appropriate for your loved one’s stage of illness.
Full bladder. When was the last urination? Is there a blockage in a catheter?
Not enough oxygen. Shortness of breath can cause anxiety and agitation. If oxygen therapy is being used, is it set at the right level?
Too many medications. Especially as the body slows down, it takes longer for drugs to process out. If your loved one is on several medications, there may be a build-up of toxins causing problems of their own. Now may be a good time to re-evaluate which medicines are truly necessary and which are causing more harm than good.
Too much of a particular medication. People who have been on pain medicines for a long time may experience delirium and confusion. Or they may experience body jerks. It may be that your loved one would benefit from a lower dose, or a different medication.
Brain tumors. The pressure inside the skull can cause agitation. Ask about interventions to reduce fluid build-up or otherwise reduce the pressure.
Chemical imbalances. Some conditions, such as cancer, can cause mineral imbalances which in turn cause delirium or confusion. Between 10-30% of cancer patients, for instance, have too much calcium in the blood. Drinking lots of fluids can help. But it may be that your loved one needs to be on IV therapy to reduce the symptoms.
If you have determined that there is no physical pain involved, and no medical problem to fix, begin looking for opportunities to create a supportive, comforting environment.
Vision and hearing. Experiment to see if things are better for your loved one with or without glasses. With or without hearing aids. It might be that there’s too much stimulation. Or it may be that there’s not enough context for understanding what’s happening. Without optimal vision or hearing, your loved one may feel very scared or disoriented.
Reduce noise, lights and commotion. It may be wise for your loved one to have just one person in the room at a time. Turn the TV off. Keep conversations simple and friendly.
Calm music can be very helpful, for the patient and for everyone else.
No restraints. Tying someone’s hands to the bedrail is only likely to make them even more agitated. Unless they are a danger to themselves or others, try to simply have someone in the room with them to offer reassurance and support.
Encourage rest and sleeping. Sleep deprivation puts even healthy people on edge!
Try to regulate temperature. If your loved one’s restlessness is simply because the end is near, there may be other discomforts that are simply the body shutting down. It’s common, for instance, for people in the last few days to have very cold hands and feet, yet complain of feeling too hot. The internal thermostat simply stops working well. Having blankets and cool cloths at the ready can allow you to quickly switch back and forth as needed.
Concern about punishment
Some people worry at the very end that they did not live their life according to their spiritual beliefs. They may be worried about punishments after death. Or uncomfortable meetings with people who have already died.
If could be that there are unfinished relationships, bad feelings with a sibling or child. This might be a source of anxiety or discomfort.
Chaplain or social worker
If you think that some of your loved one’s restlessness has an emotional or spiritual component, ask to speak with the social worker, or the chaplain. A chaplain is a person with religious training, however he or she does not push any particular religion. Chaplains simply specialize in helping people find their own answers to questions of faith, meaning, and life after death.
As an Aging Specialist, a Senior Resource Center and over 20 years experience with Seniors “Solace Hospice” has excelled in comfort care and palliative care! They have been one of our preferred providers for years in Arizona. Their involvement in the Industry, their caring staff and their professional approach is appropriate when families need them most. Costel Roman the Director of Business Relations is the biggest advocate I have met in his Industry. Solace Hospice you are appreciated by thousands of families and Senior Living Communities in Arizona.
We could not be more grateful to Solace Hospice and their staff for taking care of our loved one, even though he was on service a short time. Everyone was so sweet to us and him and were very responsive to our needs and requests. The staff was skilled, informative, and available at any time of the day or night. Most importantly, they care about us. They spend time with us. We laugh together and cry together. We always looked forward to visits. Thank y'all for everything.
I have written only a handful of reviews in my lifetime. I felt this one necessary. I have worked as an employee for Solace Hospice in Phoenix for over a year and a half. The genuine care, respect and compassion for our patients and families is outstanding. Today, our team received a generous gift card from the owner, Thomas, for Thanksgiving. Even more impressive….He and his family stayed up until 3 am cooking a homemade Thanksgiving feast for us. He walked in wearing a suit jacket, sat down and enjoyed the meal along side of us like family with little rest. This is not the first time our owner and management team have gone above and beyond to make us feel appreciated or to help out in difficult times. Thank you! Our office staff does an amazing job of multitasking behind the scenes and I truly wonder how they get it all done. Our Executive Director, Maggie, (whom I’ve nicknamed work horse) is an exceptionally hard worker whom won’t ask for a thing she wouldn’t do herself and more often does so without asking at all. She is intelligent, kind, fair and very supportive. She wears many hats well and makes it look easy. Our nursing staff is incredibly competent, compassionate and juggle the day to day challenges well. Our CNA’s are some of the hardest workers I have ever had the pleasure of working with and no matter how busy things get, they always manage to get everything done. Our Social worker, Shanna, is a wealth of knowledge and is always willing to help out. Our Chaplains are kind, down to earth, compassionate and funny. Our volunteer coordinator, Barbara, is always smiling, knowledgeable and fun. Our marketer, Costel, bends over backwards to meet the needs of patients and families. I am proud and honored to be a part of such an incredible team and have never enjoyed a job more. Thank you to all of the Solace Hospice Team!
I had a great working experience with Solace Hospice and all of the staff I have encountered, open communication and great quality in their service. The people we worked with so far starting with Costel Roman, the RNs Gina and Heidi and amazing social worker Shana enabled us to continue to work with them and refer Solace Hospice.
Been working with Solace Hospice for over a year and never cease to amaze me! They cater to each individuals needs and go beyond the scope of service. Stephanie, Sammy, Diane and Costel are doing a fantastic job, giving 110% of love and hard work and making sure everything that it’s needed arrives within 24 hours. If you’re looking for a great Hospice give them a chance, they will never disappoint.
I was reaching out to try and get some help with my mother. I called this company and was not aware they did not cover all of Arizona. I spoke to a wonderful lady who I think was Bev. She assisted me in finding a hospice for my mom. She had knowledge of hospices in the Prescott area. If I ever move to Phoenix I will be stopping by their offices to say thank you. She held my hand and called me back the next day to make sure that we were getting care for mom. They went above and beyond.
I can’t say enough about Solace Hospice. The level of care and attention to personal detail is so much higher than the other hospice company I dealt with. My family recently experienced the loss of our mother followed by our father in fairly close succession. All I can say is thank you Solace and I wish I had discovered you sooner. My mom’s passing was handled by another company. I can tell you they are not the same. Solace operates with a premium degree of care and compassion during such a difficult time
I cannot thank Solace Hospice enough for the amount of love and support they have provided my family with during this hard time. They were attentive, caring, informative and overall extremely experienced in this field.A special thanks to Maggie, Bevery, Katie, Janet, Diana, (just a few of the many) for the help you provided.Thank you all so much!!!Enea
I work with Solace Hospice and they are fantastic. Costel Roman from Solace Hospice is very professional, high ethics and integrity, and also he is respected and well known by the health community in Arizona. Simply put, it's a pleasure to work with Costel - I strongly recommend him!
I would like to express my gratitude to Costel Roman - Director of Business Relation at Solace Hospice, Thomas Fedzin - Owner of Solace Hospice during a difficult time in my life. There is never an easy moment to loose a loved one. Costel Roman and Solace Hospice have helped my mother to go to Heaven and be with the angels peacefully. God bless all of you for being by my side!!!
Solace Hospic is Definitely #1 Hospic in Arizona a team that’s Compassionate towards the needs of not only patients but owners and also caregivers. Costel Roman is so Professional and always gets the job done . Ask him what he can’t do he will tell you what he can do to make the experience working with solace comfortable as possible. Solace will always be my go to Hospic.
I've worked with multiple staff members at Solace Hospice and each and everyone is so incredible passionate about caring for the community. As a wife of a Director of Nursing at an assisted living facility, I hear often about how important great care -- Solace provides great care!
I absolutely LOVE working with Costel and and Beverly!! Costel (AKA Roman) has excellent communication and I value his team immensely! I highly recommend this team if you are looking for a hospice company with great communication skills, friendly faces, and caring hearts!
As a nurse and the owner of several assisted livings, I have had many encounters with different hospices.Solace Hospice has been amazing and has gone above and beyond for my patients and their families! Always helpful, always receptive to the patients needs and always there when needed.Thank you Solace for the outstanding care and dedication your company and your staff provides.
We are so glad and relieved to have met Costel Roman of Solace Hospice.When he came to our assisted living homes and introduced himself he sat with us and explained Solace Hospice’s vision and approach to compassionate high quality care.We were very pleased to hear that residents and families needs are above all else.These past months we worked along side them with a few of our families in our homes .We cannot praise Costel and all of Solace’s staff Enough on the quality of care,professionalism demonstrated and the compassion showed by all of Solace’s staff to the families and our team.We will only recommend a company to our families if we know and experienced first hand that they are among the best in their profession.Congratulations to Solace for putting together an outstanding team. You guys definitely exceeded 5 stars! Luis Pescador.
We were recently reintroduced to Solace Hospice by Costel Roman and Jesse Watson, two of their community liasons, and in the process were impressed with their client-focused service. The biggest selling point for us as a group home is that they were not going to be a hospice that simply stopped fighting for a client and allowed them to die. Many of our residents and their families initially are fearful of the word “hospice” and typically think it means a death sentence. Many of them are not ready to give up the good fight and Solace has been a partner with our home to ensure the resident, their family, and our group homes are all respected and active partners in the continued care and needs of the resident. Everyone from their intake staff, RNs, and CNAs was compassionate, caring, and dutiful in their tasks. Special mention goes to the Nurse assigned to our home, Sabrina. She helped us guide the resident and their family through the difficult process of passing away, and her knowledge and compassion for my resident and her family will never be forgotten. Owning three different group home locations has given me plenty of experience and exposure to many different Hospice companies, but without a doubt, Solace Hospice is one of the best. I can not recommend them enough, whether you be a group home, a family member of a loved one, or someone looking to work at a hospice company. Thank you Costel, your team provided me much peace of mind. I look forward to continue to working with your team.
I cannot begin to describe the gratitude and appreciation my family feels about the experience we had with Solace Hospice. I didn’t know quite what to expect at the time when my father was on your service. My father had such great care! My concerns were quickly relieved. Thank you for the kindness and compassion you have given to us and for the genuine concern for my father and for our family. We sincerely appreciate your tireless effort to care for all your patients and their loved ones, and your eagerness to assist at every turn.
I own 5 assisted living group homes around the Phoenix area. I am always relieved when my residents and their families choose Solace Hospice to help their loved one. I can always rely on Thomas and his staff to take care of my residents. They interact incredibly well with my caregivers and offer assistance 24/7. And they back it up. There have been numerous times when we needed some help from Solace in the middle of the night. Someone from Solace would come out to the home without hesitation and take care of everything. Thank you Thomas for running such a wonderful company!
Great professional help during a hard time. Thank you for making things easier to manage during our time of need. They gave our loved one lots of comfort any time he needed it. Which added relief to me as I knew he was in good hands. Thank you so much Thomas and staff!
As a care coordinator for multiple assisted living homes, I am grateful for the opportunity to have Solace Hospice care for our residents. Working closely with Thomas and his staff Is always a pleasure. All around, a great experience.
Thomas and staff were always friendly and available to help us. We learned so much about our Client’s situations. They are definitely very knowledgeable and confident of what they do to help our clients in our group home meet their needs.